When this week started - on Tuesday for us Brits, I seemed to face a mountain I could not climb. Six appointments in four days. Well, I did it. The Good Lord saw me through. It is behind me now. Last treatment for this week completed and home again. That is the end of the second week of radiotherapy - 7 treatments received, 14 more to go so I am a third the way through the course. Mind you, I simply cannot tell you how tired I feel. My body feels like a lead weight that I can hardly drag around. Some of it is the sheer physical effort of getting there, some of it is now the tiredness from radiotherapy. I hate feeling like this. Even my brain seems to have slowed and got muddled. Yesterday when discussing the situation over here I kept calling Tony Blair Tony Bush or George Blair. Mental and physical exhaustion. It was to be expected but I am not happy about it.
Every afternoon I take myself to bed and sleep for about three hours. Thankfully I now have a two day break before it all kicks off again on Monday.
Some of you have been through radiotherapy, many of you have not so I managed to take a couple of pictures of the contraption I have to lie on so you can see for yourselves.
This first one shows the room in general and you will see electrodes hanging down from the ceiling like the strings of a jellyfish and one of the two computer monitors that keeps track of everything.
This second one shows the table I have to lie on and the radiotherapy machine behind it. There is an arm coming out from the big green circle with something that looks like a big bowl on the end of it. When I am on the table and all calculations have been double checked, the table is raised and turned so that it lies on the flat board under that large arm. The the big bowl descends and then rotates onto its side and the radiotherapy comes from there. Then the whole thingswings around to the other side and the treatment is repeated. You can see the table I have to lie on. Believe me when I tell you it is very hard on the back, especially the upper back.
Lastly a closer view of the table. You can see the hard plastic headrest and the cuffs where I have to place my left arm up alongside my head. Obviously you have to stay perfectly still, you cannot sneeze, scratch your nose or even move the other arm which is down by the side of you. Any slight movement can mean the radiotherapy can be off the mark. When all is ready, the radiographers leave the room a buzzer sounds and a red light comes on to show treatment is in progress. This happens three of four times with the radiographers coming in between each "zapping" to re-check again all the calculations and the table position as the table has to be swung around.
I am grateful to the staff for allowing me to take these photos to share with you. Neither of them wanted to be in the picture, both hate having their photos taken even by family. Many people do.
On the way home I did manage to stop at a little garden centre where they have a shop. It is more of a big garden shed but they have all sorts in there, candles, plant pots, all sorts of decorative objects, garden ornaments and lovely wooden bowls and figures made by a local craftsman. I did have to hold tightly onto Becky because my legs felt like jelly. However, I did manage it and they had a sale on. I got a lovely photo frame for under £2, a decorative small glass bowl for burning a candle in for £1 and a very pretty topiary tree made out of dried flowers which I now have in the middle of my mantlepiece. It looks so nice and I felt that I was entitled to treat myself.
The dogs and Leo do not know what is going on with my disappearing every morning, the dogs in particular were so used to my be being indoors all the time. However, they are being very good. Leo is in for a little shock late this afternoon. He has an appointment at the vets for his jab. He is not going to be ahappy little kitten! I can hardly wait to see his reaction when he ventures into the garden for the first time although that will not be for a while yet. He is bound to fall in the pond at some stage but to try and stop this happening I might dip his feet in it, cats do not like that and he will realise that he should keep clear.
Well, that is all my news. I would like to thank Kathy (Yada, Yada, Yada) for the lovely card that arrived from California this morning, the picture on the front made me smile and the message she had written was lovely. Big hugs to you my dear friend.
We have a pile of washing in the machine but it is going to rain so we will have to decorate the house with it. All the housework is way behind so I am glad we do not get a lot of visitors. Still, all that can wait. Treatment comes first. Housework will always be there.
I am going to spend a very quiet weekend, sleeping quite a bit, listening to my talking books and doing as little as possible to build up my strength for next week.
I wish each and every one of you a lovely weekend. Take care everyone and God bless you.
*P.S. Just wanted to say that Julie has now been sponsored for £246 - can we make it £300? in the Race For Life that she will be competing in at the end of June. Way to go Jules!!! If anyone would still like to sponsor then please visit this link - Race for Life - help us make more people survive
Love
56 comments:
Hi Jeannette, glad as ever that you are managing radiotherapy so well. I am not new to hospitals, but I have to say that all that equipment looks really intimidating. Extra brownie points for you! Forget the washing and the ironing for today and just relax. You have really earned it this week. Have a nice weekend.
Bless you.
Antonella
Jeannette all the household chores can wait... you are the important one take care of you. I remember the set up well and you deserve hugs and kudo's for all that you are doing.. it isn't easy for anyone and you my friend have grabbed 'the bull by the horns' and forged ahead.
hugs
d
thanks for sharing picstures of the machine. I hear you are very tired. tey say there are meds that help with this. but still you are tired. Im glad your making it to your trips and all and IM glad your doing good so far on iit. Ohmy poor leo will be in such shock
Looks like a torture chamber! ;) Glad to hear you are doing well. Hang in there and eat lots of iron rich foods. Linda
Thank you for sharing the pictures. It really helped us to see inside of what you go thru day after day. Please take this weekend for yourself and get all of the rest you need. You need to build your strength.
((hugs))
Jeanne
the machines look so scary, you are really brave to be going through all of this Jeannette. Have a nice relaxing weekend..........Jules xxxxx
Well done Jeannette you are so brave to go along to all those appointments with all the other things you have to cope with.I am sooooo happy one week is finally over.CLAP CLAP.you deserve so much praise.The pics were very clear and what a good idea to let others see just what you have to go through and how the machine does it's work.Yes you do deserve to treat yourself and I am happy to read you got a few bargains.Good idea about LEO with his wet feet LOL! he will either take heed or not. You rest now Jeannette and make the most of that weekend just as you wish,you have earned it..The housework will wait.Take Care God Bless prayers still being said thousandfold.Kath
Astoriasand http://journals.aol.co.uk/astoriasand/MYSIMPLERHYMES
(((((((((((((((((((((((((((JEANNETTE)))))))))))))))))I am sorry you have to go through all of this.Thank you for sharing the pics.It does look so scary and painful just laying there.Just know and I know you know,God is there and I am there for you to.Have a nice weekend and Happy Mothers da.
Thanks be to the good Lord for getting you through this hard week and for providing a little reward by the way of that garden shed...You do deserve a reward and lots of hugs for this week well done. Hope you do get rested and strengthened for the week ahead. 'On Ya' - ma
Thanks for showing all that equipment Jeannette. It was very interesting to read and see how it works. I am glad that you felt like going to the garden center for a while afterward. You did need a reward for all you have been going through. Good luck with taking Leo to the vet. Hope your weekend goes well and hope you can get plenty of rest. Hugs, Helen
I admire your courage Jeanette..you are a trooper!!! hang in there...
lyn
Oh Jen, it all looks so hard and clinical, my heart goes out to you honey and I shall find you some ice cards to send so you can see my Island home and it might take your mind off things for a while. Poor leo is going through the war too with having to have his injections, feel for him as I hate the thought of injections too. But mostly feel for you dear friend, thoughts and prayers are with you always, look out for the postman, he,ll be coming soon............. Love and hugs Anne x x x
One treatment week gone, well done! Thanks for showing the equipment, it was very interesting. Have a restful weekend!
~~Kath~~
That's one week over with........you are doing really, really well. Proud of you. Eileenx
A mountain, yes...but your climbing it! WOo HOO for you!!!
Glad you have a couple days rest. :)
TY for posting pics.
Hugs & prayers,
Sugar
Thanks for sharing all of this...you got through a very tough week and came out a warrior! Good for you!
Hugs,
Nancy
Jeanette,
You are a trooper for going through this. I would be crying everyday. Im also battleing my own disesae,,,,,,I wont ever lose it.I have auto immune disease. I catch things so easily. But im up and walking two to three miles a day. If not more.
You are in my prayers my friend.
HUGGGGGSSSSSSS,
Tammy
Thanks for sharing your pictures they were very interesting to me!! I do have one question though, how long does one treatment last? I can't imagine laying on that hard table for long! I hope you have a great weekend and also a speedy recovery! Roe
Wahoooo! One-third done with the radiotherapy! I sat with a woman last night at church who is undergoing daily treatments for breast cancer. Her right arm was swathed in wrappings due to lymphedema. She was wearing a scarf on her hairless head. But she was smiling and grateful to be with us. We are starting some support groups at church to minister to those surviving cancer or other health issues and other life crises.
(((((((((((hugs)))))))))))) and prayers for you, dearheart
loving you
karyl
(((((((Jeannette)))))))))) your doing great. Now take the weekend and rest. I hated those darn machines when i went through radiation treatments. that thing they make you lay on was murder on my back. I had 20 treatments, i went to doctors 5 days a week for 4 weeks. a 35 minute drive there 10 minutes in radiotherapy room and a 35 minute drive home. I drove myself to and from there, even drove myself alot during chemotherapy.
Love,
Cindy
Rest up and save your energy Jeannette. I'm so happy that you have been able to get there and back without too much discomfort. I had 160 mile round trip for my radiotherapy. I was having none of that as I am the only driver in our house. I was given a flat in the hospital provided by CancerCare where I stayed all week and came home at weekends. I was even given vouchers to help pay for my meals whilst eating at the hospital. What great thought CancerCare have put in to cancer sufferers creature comforts. I cannot thank them enough! When I was too ill to drive they provided me with a taxi. I will always be there for them so that others can experience the same benefits that I did.
As you say 1/3 down 2/3's to go. Time flies when you reflect back on it, All the best!
Jeanie
Have a nice rest this weekend, you deserve it. You can enjoy Leo, I know he must make you smile. Sorry about Tony Blair, he always seemed like such a nice honest type guy, just trying to do his best. Joni
Well done Jeannette for getting this far in your treatment. Your description of the procedure was most informative. I had my annual cystoscopy today, which was inconclusive - have to go for another one - with a bigger camera lol My eyes are watering at the thought....... ;-)
Keep smiling, we are all with you on your journey :-D
Best wishes to you & yours
Freda
Don't feel one bit bad about needing a nap! Why is it we always do? My dogs love when I nap because they take the opportunity to sneak up on the bed and get a cuddle. 2 big dogs and a small one all surrounding me like I was the last source of body heat on earth. :)
Neither of my cats love water, but one of them will pretend to doggie paddle if there's a shallow pan of water around. It's the strangest thing...
big hugs your way....today and always...
~Amy
Sounds like there is a light at the end of the tunnel as far as those treatments are concerned. Thanks to the hospital for allowing you to take the pictures of the treatment area. I would definitely have a hard time laying on that table myself..having had major low back surgery years ago. I have a difficult time when I have a CAT scan or an MRI. Leo may become a swimmer...and it will certainly be easier to bathe him if he's used to water. Have a wonderful weekend...it's Mother's Day on Sunday here in the U.S. so I'll close with a "Happy Mother's Day" greeting. Linda in Washington state
You are doing so well. We are all so proud of you. That was good that the hospital allowed you to take the photographs. Hopefully it will be helpful to some people who are afraid of the unknown. Have a good weekend rest plenty and enjoy wee Leo and the dogs. Much Love Sybil xx
I move up and down just breathing so i don't know what would happen then, but well done for getting through it so far. I understand those jelly legs i have been there, unable to get out, so feel proud of yourself.
Jenny <><
http://journals.aol.co.uk/jennyp51/stop-the-clock-times-moving-too-/
Technology is amazing Jeannette and I wish you all the best for next week. You did brilliantly in this one so have a wonderful and relaxful weekend. Rache
well done you doing great hugs Anne
Jeannette you are doing so well ~ time goes so quickly it will all be over before you realise it ~and that tiredness will soon pass ~ Ally x
it looks like a medieval torture machine,! well done though you are doing really well it will all soon be over, thanks for keeping us informed.Beckie.xx
Wonderful of you to get those pictures, Jeannette. They will be so helpful in removing the mystique for others.
Have a lovely restful weekend. Bunny x
hey girl, i love your new digs.........lol. nice sterile place. i am glad you have made it through this far. keep the chin up and keep trudging, as God is there with you holding onto you.
blessings dear friend,
regina
jeanette, thanks for sharing those pictures and your experiences , I am sure this will be most helpful to someone else and I hope you can take strength from knowing that to get you through the radiotherapy.
Oh Jeannette ,are you sure this isnt the set from a scene in Dr Who ,that is so nice of you to share this experiance ,it all looks so scary ,have a lovely rest ready for next weeks ordeal,each one is one less ,with love Jan xx
Thank you for sharing the pictures with us. Those contraptions look very scary ~ you are a very brave lady. Glad you treated yourself to the lovely bowl etc :-) Bless Leo ~ hope everything went ok at the vets
Jenny
Dear Jeanette, give yourself a big pat on the back for getting through this week, you deserve it. Forget about the housework and washing, it will still be there tomorrow. Rest up all weekend if you can. Poor Leo,he won't be best pleased, but it has to be done. Always in my prayers. Best of luck for next week. Goodnight Jeanette.
Well done, Jeannette, I am sure you'll have the strength to see this course of treatment through to completion. Not easy, by no stretch of the imagination. You'll get there :-)
Jeanette, know going thru the radiotherapy can wipe you out dear, but if it helps it sure is worth it dear...just take it one day at a time....if you don't feel up to doing anything, then don't...just relax with a nice cup of hot tea. I bet the dogs and Leo wonder where their Mommy is and are sure happy when you come home. Take it easy dear, need to keep up your energy.....have a good weekend...Arlene (AJ)
Jeannette
I'm glad you get to rest this weekend before you start the next round of treatments. You are going through so much right now and you sound so upbeat and positive, I am so proud of you!
Sam
wow..those machines look massive...Thanks for showing us...I ams o proud of you Jeannette...you are a real trooper and so strong...Take it easy this wekend, ok? DOn't overtire yourself.
Love ya,
carlene
I am proud of you.
Dear Jeanette, my heart stopped looking at those photos of the treatment room ... it looks like a blimming torture chamber. Thank goodness you are getting through the treatments and you are truly amazing in the way you are dealing with this. So proud of you. Rest well dear friend over this weekend and I hope all this zapping is going to make you cancer free and safe very soon. Hugs, Terry x
Jeannette, that room looks like a torture chamber but it gives life back. I would be very scared and think you are doing a wonderful job of getting through all of this. I'm glad you treated yourself, and you are certainly right about the housework. Little Leo may take a dip but I'm sure he's not going to like it very well. Hope your weekend is relaxing and you regain some strength. Love xx Chris
You are being very brave. Good to know you are a third of the way through. Good luck I am praying for you. Love Conniexx
Dear Jeannette,its so good of you to share with us all you are going through but you are being brave and getting through it ,with our thoughts and prayers ,we are all behind you .Glad you were able to go and buy some well deserved bargains ,have a relaxed weekend ......Love Jeanxx
Oh Jeannette, this was very interesting and I'm glad you shared these pics. I am glad you got to treat yourself in a good way after the treatment by going to the garden store. Chuckled at Leo's big shock! Guess he does not like the vet? I guess a "jab" is a shot? Sounds like it. LOL.
Have a good day. It's mother's day over here. I think you all have it a different day? You don't have to answer all my questions. I'm just blabbin along.
Sonya
You are still in my thoughts and prayers to have all of this behind you before you know it, and to have lots and lots of sunshine in your life again. Speaking of Tony Blair, I, for one, will miss him. He has been a very good friend to the U.S., and I can't tell you how much that has meant to us.
Hi Jeanette. Well done you got through another week. Thanks for the photos, it is nice to see what you are going through. So glad you are sharing your journey with us. Leo is wonderful, I sure he will be O.K. with his injection. Better safe than sorry. take care Kathie.
Jeannette, thanks for reading my poem. My thoughts were also with you when I wrote that one. I have three people I have grown fond of here in Jland, of course there are others that I care about too, but these three are special. You are one of them. Well, just within the last year all three have been affected by the big C. It makes me feel helpless, unable to do anything to alleviate their pain. You all are such great fighters too..I pray every day for all of you and hope that God will grant my good wishes for you.....love, Sandi
Hi Jeannette, Very well done on getting your first week of treatment over and done with, forget the housework that can wait untill your feeling like your oldself again, have a good weekend, and get plenty of rest, Love Lynne xx
The equipment looks scary at first,you soon get familiar with it all dont you think.Dont worry about the housework,the rest will do you good.
just wanted to say hi. I hope you are feeling ok.
Really interesting to see them pics - great that they let you take them Jeannette - Love Laine xxx
Really interesting to see them pics - great that they let you take them Jeannette - Love Laine xxx
Those machines alone would scare the hell out of you....Jeannette ...as i said before i am proud of you for being to brave.
Hugs
Jayne
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