Yesterday I went for my assessment. I had to wait all day as my appointment was not until late afternoon. That put a lot of pressure on me especially as I have had an upset stomach for the last few days (mainly nausea and loss of appetite). However, I am happy to report that I made the journey quite well.
Obviously I had to go to Radiology and Oncology which is in a completely different building and, as usual, Mike had the hassle of finding a parking space. There is just not enough room for all the cars that are there on a daily basis and sometimes you have to drive around and around until a space becomes vacant.
The waiting room was very pleasant, not one huge open room like the Breast Clinic. The waiting rooms here are small, about four chairs, a couple of changing cubicles, nice pictures on the walls. We sat chatting to a very nice elderly couple. He was having radiotherapy on his jaw. He has Parkinson's Disease and they felt that radiotherpy might be able to stop the constant dribbling he has to endure. Let us hope they are successful.
Then I was called. Nobody could come with me this time. On first entering the room and seeing all the machinery I must admit my stomach turned over. Then I was put at ease by a very lovely man, one of the radiographers. A couple of silent tears ran down my face at the prospect of having to go through it all and it was yet another reminder that I am a cancer patient. He put his arms around me, told me that his name was Elijah and that God was with me. He also told me I was among friends, friends who were helping me to recover completely and not to be afraid. He said I could ask him anything, tell him anything and never be scared to admit that I was scared. That did a lot to put me at my ease. I then had to answer some questions which he ticked off on a form, one of which was would I mind if occasionally, students were in the room. I readily gave my consent. They have to have their training and having gone through whatI have already, I have no qualms about anyone seeing my naked breast (do not expect a picture here). So, if I can help students, all the better.
Then it was onto the table. Now this was not easy for me. I never lay on my back due to the arthritis in my neck. I do get pain if pressure is put on my neck. So it took them sometime to adjust the headrest to get the best possible position for me but even then it was very uncomfortable because there was no soft padding, just a hard metal rest. Also having my arm fixed into the air. At first that was o.k. but after a time it started to "pull" on the operation scar, so once again adjustments were made to try and make it easier for me.
They took lots of measurements, drawing crosses and marks on my chest and breast (thankfully most of that has now washed off), attaching metal strips and re-positioning them, taking a scan and and X-ray. Then the machines came into play. I must admit I felt like I was on the Starship Enterprise or something. A machine suddenly appearing on the right side and automatically scanning across you with green flashing lights, one coming up from the left with red lights. This happened on various occasions with the two machines moving around me, the table I was on being swung around. Endless measurements being called out and double checked. The table settings listed. In all it took around 30 minutes or so but it felt much longer. The last thing was the tatooing. Only one hurt and they warned it would because the area is still tender but one of the staff, the woman, held my hand and gave me permission to scream. Well, I did say "ouch".
That was it. Then I was given my own top to bring with me on all subsequent visits and Elijah then took us to the Linac 5 area where I will be having my radiotherapy. This is a brand new part of the hospital with all new and more accurate machines. He told me what to do when I get there and gave me my first treatment date - 2nd May.
He walked us to the main entrance and put his arms around me and gave me a huge hug, a real cuddle. He told me he will be doingquite a lot of my radiotherapy but not always as he will obviously not be on duty all the time. He shook hands with Mike, told us not to worry, everything would be fine and that was that.
Coming home I decided I wanted to take a much longer drive so we stayed out for a further hour. I was very tired when we did get home.
I must admit today my muscles are hurting across under my shoulder blades and also my lower back but then I always have problems with that. Now, all I need is for my stomach to get completely better and I feel things will really be looking up.
So, I have taken another step on the road to recovery, another hurdle overcome. In some ways I wish the radiotherapy could have started next week rather than having it hanging over my head but they know best and it will give me a little break from all the appointments and also, hopefully, give my stomach time to settle down.
It was not caused by the anti-cancer drugs which I commenced taking last weekend because I already had the upset stomach before I started them. Whether it is a bug or my stomach is just irritated by all the stress I have had I do not know. My own doctor has given me some tablets that cut stomach acid but I really do not want to take them if I can avoid it. I am on enough tablets already and these ones also have a list of side-effects as long as your arm. I would prefer to eat light food and let my body heal itself if possible. Anyway, time will tell.
Please keep your prayers coming. Well, I need not ask because I know that you will. I have come a long way but now face the hardest challenge of all. Going for radiotherapy every single day. Also please pray that my stomach clears up really soon because I do not need anything pulling me down.
I shall leave you now and go and rest my back. I asked Elijah and the other two team members if I could take their photos for my journal and they were thrilled. They said it was a great idea sharing my experiences with others and that it might help somebody at some point.
Here is Elijah
Elijah, "Buzz" and Harry
49 comments:
Threre are alot of tummy bugs going round, jord is off school anf Mark is off work, theyElijah, Buzz and Harry look a good team! they sound like they come out of a kids film!Im glad they have put your mind at rest.Take care and good luckBeckie.xx
What a day ,but well done you made it ,even going for a drive afterwards ,it all sounds very bewildering and frightening ,but at least this part is over ,and you have a bit of an idea what to expect,of course you are still in our prayers ,I hope the tummy problem clears up quickly ,With my love Jan xx
I think perhaps Elijah is an angel in disguise! Good job on your treatment and hang in there, it will get easier! I have to take Nexium for my stomach or I have chronic acid reflux. Linda
Hi Jeannette, all sounds very tiring but, as you said, it is another step forward to recovery. You are doing very well, you should be very proud of yourself. I am sure everything will be fine soon. Maybe this stomach problems are also caused by all these worries and stress. Try to relax as much as you can. Take care.
Ciao
Antonella
you know funny when yousaid the name Elijah I pictured a man almost close to that!!!!!! Looks just about like I pictured and that smile too. in the second pic. IM glad things are going better and you had a good visit too.
Jeanette
It sounds like these people really know what they are doing and that you are in good hands. I'll be keeping you in my prayers as you start through this next phase of treatments.
Sam
glad you had friendly people:)
Deb
I am glad that you had such kind and compassionate people to hlep you..it makes all the difference in the world huh? you are right about the prayers..you are always in mine..
Lyn
Hi Jeanette,
So pleased that you had a lovely Dr yesterday, who put you at ease with what you were about to go through, it makes a world of difference when you have someone who understands how nerve racking these sessions can be, hope that you get over your tummy upset soon,
Love Lynne xx
Oh Jeannette....I can feel your anticipation about it all...my prayers are certainly with you all the way...just wish there was more I could do to ease your pain and discomfort...having watched my two sisters go thru much of this...I know exactly where you are....hope all is better with your stomach...and that you get your rest.....God Bless....Hugs from KY....Ora
I'm so glad to hear you have another wonderful doctor to care for you. Your journal will be an inspiration to anyone facing the same thing. When we share our troubles we let others know thay are not alone. Of course all cases are not the same, but all have the same hoped for end --the cure. You are in my prayers and in my thoughts. We have some sunshine here this morning so I'm sending some SMILES your way today! 'On Ya' - ma
Jeannnette. . I really identify with all you say. . its nervewracking and worrying and bewildering and we used to wonder how have we landed here . . in a cancer clinic. . it just dont seem real to us still.Elijah looks like he will be very supportive.You are doing well. . keep your spirits up .Theres nothing to fear but fear itself. Just ride it all like a wave.And look for something joyful every day. . but then you always do that anyway. As ususal you are in my thoughts and prayers. . .along with Mike as I know pretty much how hes feeling too.
Sounds as if you did really well yesterday, even wanting to take a ride afterward. My prayers are still going up for you. I hope your tummy settles down soon. I have the acid reflux thing and sometimes I have to take meds for it. Hugs, Helen
Sounds as if you're getting on quite well, all things considered. {{ }}
I keep you in my thoughts & prayers dear friend.
Blessings, Sugar
((((((((((((((((HUGSTOYOU)))))))))))))))I am glad things went well with you,I am glad you had good Doctors and a good nurse to help you out with all of this and making you feel comfortable.That was ver nice of the Doctor to give you a hug.You are still in my prayers.Have a nice day.
Sorry you have to go through all this, but it sounds like you have a great support group. The machines must be scary, but the medical team sounds very caring, that is so important. You will get through this and be fine and be able to help other women going through it after you are done. Hope your weather there is nice and warm, ours is cold and not very spring like. Take care and hang in there, Joni
Like you say, another hurdle overcome and this new team seem very compassionate and supportive to both you and Mike. I hope your tummy soon clears up and will pray that things get better for you. Take care. Eileenx
Will pray that you continue to get the good support from you doctors...Also keeping you in my prayers to be healed! Hugs,TerryAnn
Oh Jen, it seems like things are going well for you and Elijah and his team sound like wonderful people who will put you at your ease and help you every step of the way. Plus it sounds like this going out is doing something positive for your agrophobia specially as you didn,t want to go home straight away but stayed out for a further hour and a long ride. So good to hear this my friend and I think you are right about your stomach being down to stress and nerves, it,s amazing what ill affects stress can cause to different parts of your body. You still have a long way to go Jen and I will be praying for you every step of the way because I,m sure you will come out the other side an even stronger person than you are now, if that was possible!! You have taken the first step of many and a very positive one at that, God love you Jen for being a wonderful person and a very dear friend and if God doesn,t love you (which is impossible) then I do!! Take care honey and don,t give up on the fight x x x x x x Love Anne
Hi Jeannette ,sorry about your tummy playing up ,could be tied up with nerves ,I alway feel sick when worried about any thing .The Doctor called Elijah sounded a nice caring man,good that he gave you a hug ,shook Mikes hand and told you both not to worry .Another step forward,well done and hope and pray it keeps being positive ,Thinking of you ..With Love Jeanxx
Hello Jeanette,
Thank you for sharing alll of this with us... You are touching so many ;) but you always have! Love the photos! Tell them they went all the way to California ;)
Hugs with Love and prayers,
Kendra
Keeping you in my prayers. Hugs.
dear jeanette you are such an amazing lady.thank you for sharing this with us.i hope your sharing helps you as much as it helps me.your story is very close to home for myself.i love your photos! love jo x
You are going through so much Jeannette, one cannot visualise what this type of cancer entails, so your telling of it is a real eye opener. I have been extremely lucky in that I barely know that I have this darned disease. My 'annual' scan is next month, didn't think it would be so soon. So crossing everything that it will be clear. I have no symptons so there's just no way of knowing .
all the best to you Jeannette
(((((hugs))))))
Freda
I'm glad you came thru the appointment. As I read about your discomfort on the table, I was reminded of when I had a MRI on my leg. I have a thinning lower disc and boy did my lower back ache by the end of that exam! I can't imagine though your discomfort and I'm just glad you have this one behind you. Beautiful scene, I love waterfalls. God Bless!
Hi Jeanette, think about you often, just recently I have been going to the little wood close by to our house, it is magic, it is not a large wood, it is surrounded on three sides by houses, but it has a charm of its own, squirrels galore live there, and such a hugh assortment of birds, it is so magical, and peaceful, you take care, God Bless Joy x
Hi Jeanette well things are starting to get done and yu are facing thm with couraged and determination. All I can say is well done. The nurses look wonderful and thier kindness is what you need at this time. I am still praying for you and think of you every day. Love to Mike and Beckey and you take great care of yourself. Hugs Kathie.
wow, u've been thry so much already. Im so glad that you have such nice Doctors, who seem to really care. That helps alot. *hugs*
Good to hear you have such caring people to look after you. take care
luv bella xx
(((((((((((Jeanette))))))))))) what a nice man he must be! I am so glad you are in good hands. Prayers for you continue.
loving you
karyl
My dear Jeannette,
I`m so pleased to hear that you have some lovely people taking care of you while you go through the radiotherapy. It must go some way to making you feel easier when you feel comfortable with those around you. I must admit I had no idea what radiotherapy entailed and it does sound daunting. Of course I`ll be praying for you, of that you can be assured.
Love Sandra xxxx
Have I told you lately I think your a wonderfully courageous woman? Your facing your fears and doing what you need to do to get better and keeping your chin up in the midst of it all. Your always in my prayers on the smoke dear one!! (Hugs) Indigo
Oh you brave girl, I am so proud of you going there today. I must say that I wouldn't mind a cuddle from that Elijah one either. How sweet he sounded and just the person that you needed to have looking after you today. I think maybe your stomach problems are all caused by nerves as you must be churning up inside. Big hug, but gently done. Terry x
Well Jeannette another appointment down and at least you have confidance in the new team,seeing as they were so understanding once more and treat you so kindly.It does make all that differance.Why?carn't all nursing staff be the same and doctors,it would save lots of out of hours stress.I hope you feel well throughtout your wait for the next appointment and everything goes just as good as it did this time.Look after yourself.Prayers are still being said.Take Care God Bless.Astoriasand http://journals.aol.co.uk/astoriasand/MYSIMPLERHYMES
My prayers and thoughts are with you. I am so proud of you for getting these treatments and being strong and brave. Just remember it's okay to cry and God is with you and we are all praying for you. Hugs,
Lisa
You have always been in my prayers! :o)
Lisa
a good cuddle is always welcome! I pray all your treatments go as well. rose
god bless you and those dear people working there.
Elijah sounds wonderful, he obviously knows what a difference a cuddle can make xxx We are with you all the way
Jeannette I am so glad you have such wonderful people looking after you ~ Friends that are helping you recover ~ I pray the rest of your treatment goes well ~ Ally
http://journals.aol.co.uk/ally123130585918/Lifewithally
((((((((((Jeannette))))))))) you are doing great so far. I am so proud of you. Good for you for staying out an extra hour. I keep you in prayers always.
Love ya,
Cindy
So pleased to hear that you are going to be with a wonderful radiography team :o) There seems to be a tummy bug of some kind going around just now...I thought mine went squiffy from something i ate but a couple of my friends have had same thing...On and off for last couple of weeks and i want it to go and stay gone...Pray yours gets better soon as it's last thing you need just now...Will be thinking of you on may 2nd {{{{hugs}}}}} Caff xxxx
Well, of course Elijah can't be there every single time; he has other important work to do for the Master as well. ;o) He may not be an angel, but I do think he is heaven sent to you! How good of God to bless you with such a kind, caring, Christian person to aide you in your treatment! Proud of you for allowing the student observation! Perhaps it will also give them a better sense of the compassion needed with patients. - Barbara
Jeannette, I'm glad you made it through this assessment and hope your stomach settles. Of course, you know the prayers are always forthcoming. Hope you have a nice peaceful weekend...Love xx Chris
That Elija is an angel on earth. No doubt about it! I really believe they exist and he certainly is one. I can see from their faces that these people are all wondering caring souls. Please just take one day at a time and don't let yourself get overwhelmed by all that is happening in your life right now. I'll certainly keep praying for you. Bless.
Love,
Susie
http://journals.aol.co.uk/susanebunn/ItAllStartsAfter50/
What kind faces they all have. Why is it so many black people end up in nursing? They must have a natural compassion for those who are ill. my Nikki works with a lot of black and Phillipino nurses in her hospital. You are being so brave.You are in my prayers. Keep going Jeanette. Love Conniex
your recovery and bravery are an inspiration to us all love zoe xxxx
Dear Jeanette
hugs
I am so glad that you have Elijah helping you throught his!
my prayers and thoughts are with you
love,nat
I do hope that your stomach upset is diminished. Eating soda crackers always settles mine. I ate several dozen at 4 am last night and I share them with Salty the dog. Having such caring people like Elijah makes all the difference in the world undergoing treatment for cancer. It is rare to find people with that much compassion for fellow human beings. You have my thoughts for your well being and that you will be completely cured through the excellent medical treatment you are receiving. Hugs, mark
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